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Glenda Umaña
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ESTÉFANI ESPÍN Y GLENDA UMAÑA SE UNEN PARA APOYAR COMUNIDAD CON HEMOFILIA EN ECUADOR

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El programa especial HEMOFILIA EN POSITIVO, conducido por la periodista internacional Glenda Umaña será transmitido en alianza con la periodista Estéfani Espín el día 28 de enero a las 7:00 p.m. hora de Quito y Miami.

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25 Enero, 2021

Carlos Reyes tenía tan sólo 6 meses de nacido cuando sus padres empezaron a encontrar moretones por todo su cuerpo. Fue en ese momento cuando decidieron dirigirse al Hospital de Niños para comprender qué era lo que le sucedía a su bebé. El fue referido a un hematólogo, donde lo diagnosticaron con Hemofilia A severa. 

Carlos Reyes, niño con Hemofilia

Desde aquel momento, el niño ha desarrollado inhibidores a los factores de coagulación utilizados para tratar la enfermedad, así como también una hemartrosis crónica es su rodilla. Su madre, cuenta la conmovedora historia de cómo su hijo no ha podido tener una vida normal, como el dolor muchas veces les ha quitado las esperanzas y como también no se darán por vencidos hasta que su hijo tengo acceso a una mejor calidad de vida.

La madre de Carlos, Maribel Moreira y su historia forman parte de los protagonistas del programa especial HEMOFILIA EN POSITIVO, conducido por la periodista internacional Glenda Umaña y que será transmitido en alianza con la periodista Estéfani Espín por medio de sus plataformas de Facebook (https://www.facebook.com/estefaniespinb) e Instagram (https://www.instagram.com/estefiespin/) el día 28 de enero a las 7:00 p.m. hora de Quito y Miami.

“Desde que contactamos Estéfani y su equipo para presentarles el proyecto fueron totalmente receptivos y mostraron una gran empatía y sensibilidad con las personas con hemofilia, de las que muy poco se habla.  Estamos sumamente agradecidos con ellas por permitirnos transmitir este programa en sus plataformas”, destacó la ex presentadora y periodista de CNN EN ESPAÑOL.

Umaña detalló que la vida de la persona con hemofilia ha evolucionado positivamente, gracias a los cuidados y los nuevos tratamientos.  Desde abril de este año, Glenda se ha dedicado a nivel regional a apoyar a esta comunidad y ahora está desarrollando un trabajo más específico en algunos países. El objetivo del programa es conversar desde la óptica del paciente, el especialista y los encargados de las políticas de salud.

En esta valiosa conversación para sensibilizar no solo a los tomadores de decisión en materia de salud pública, sino a la población ecuatoriana, también participan desde México, Dr. Carlos Martínez: Médico Hematólogo PhD; la Dra. Katiuska Moreno Hematóloga-oncóloga Pediatra, Diego Alvarado persona con hemofilia, y Greys Ríos familiar de un niño con hemofilia. Además de ellos, por medio de cápsulas testimoniales participarán Maribel Moreira, madre de Carlos Reyes y Adriana de Angamarca, madre de Adrían Vergara.

Adrián Vergara, niño con Hemofilia

La hemofilia es una enfermedad rara heredada de la madre. Los síntomas comienzan cuando los niños están muy pequeños y aparecen moretones, que se confunden con golpes en la piel que cotidianamente ocurren cuando los niños juegan. 

El programa HEMOFILIA EN POSITIVO será transmitido el día 28 de enero a las 7:00 p.m. hora de Quito y Miami por medio de sus plataformas de Facebook (https://www.facebook.com/estefaniespinb) e Instagram (https://www.instagram.com/estefiespin/)

 También, será posible ver el programa completo en el Canal de You Tube, GLENDA AHORA, de Glenda Umaña.

Si desea información adicional puede contactarnos a [email protected] o [email protected]

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LAS MÁS LEIDAS

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La artista tica Melania Pacheco trae su nuevo sencillo “TIEMPO” a la escena de música nacional

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